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Creating a Dynamic, Tailored Online Health Education and Support Program for Women with Breast Cancer: A Case Study of the CHESS Program

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Abstract:

This paper describes the process we used to develop and integrate a tailored health information system for an existing online health education and support system for women with breast cancer called the Comprehensive Health Enhancement Support System (CHESS) “Living with Breast Cancer” program. The foundational steps of formative research involved identifying general informational needs associated with key breast cancer events or experiences followed by differentiating individual characteristics that distinguish between informational needs. The next steps included creating a tailoring framework and then mapping CHESS’ existing content to these differentiating characteristics and treatment stages, and developing decision rules to trigger tailored content to users based on data they input into the system. Finally, low fidelity prototyping sessions were conducted to determine the most appropriate format for users to update variables informing CHESS tailoring, to identify the optimal degree of subtlety appropriate to deliver tailored content, and to learn how tailoring methods affect general navigation and usability. The objective of this case study is to help other eHealth developers learn from the insights we’ve gained from our extensive regimen of formative research focused on how to develop an online tailored information system for women with breast cancer.

Most Common Document Word Stems:

tailor (121), inform (101), health (75), cancer (73), system (60), user (59), chess (58), breast (56), use (49), women (48), research (43), content (40), educ (39), need (32), treatment (31), relat (29), support (27), develop (25), servic (24), interfac (23), comput (22),

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breast cancer, eHealth, tailoring, personalization, targeting, push
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MLA Citation:

Shaw, Bret., Hawkins, Robert., Pingree, Suzanne., Gatzke, Kelly., Tryon-Petith, Charmaine., McDowell, Helene. and Gustafson, David. "Creating a Dynamic, Tailored Online Health Education and Support Program for Women with Breast Cancer: A Case Study of the CHESS Program" Paper presented at the annual meeting of the International Communication Association, Sheraton New York, New York City, NY, <Not Available>. 2008-10-10 <http://www.allacademic.com/meta/p14986_index.html>

APA Citation:

Shaw, B. , Hawkins, R. P., Pingree, S. , Gatzke, K. , Tryon-Petith, C. , McDowell, H. and Gustafson, D. "Creating a Dynamic, Tailored Online Health Education and Support Program for Women with Breast Cancer: A Case Study of the CHESS Program" Paper presented at the annual meeting of the International Communication Association, Sheraton New York, New York City, NY Online <APPLICATION/PDF>. 2008-10-10 from http://www.allacademic.com/meta/p14986_index.html

Publication Type: Conference Paper/Unpublished Manuscript
Abstract: This paper describes the process we used to develop and integrate a tailored health information system for an existing online health education and support system for women with breast cancer called the Comprehensive Health Enhancement Support System (CHESS) “Living with Breast Cancer” program. The foundational steps of formative research involved identifying general informational needs associated with key breast cancer events or experiences followed by differentiating individual characteristics that distinguish between informational needs. The next steps included creating a tailoring framework and then mapping CHESS’ existing content to these differentiating characteristics and treatment stages, and developing decision rules to trigger tailored content to users based on data they input into the system. Finally, low fidelity prototyping sessions were conducted to determine the most appropriate format for users to update variables informing CHESS tailoring, to identify the optimal degree of subtlety appropriate to deliver tailored content, and to learn how tailoring methods affect general navigation and usability. The objective of this case study is to help other eHealth developers learn from the insights we’ve gained from our extensive regimen of formative research focused on how to develop an online tailored information system for women with breast cancer.

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Document Type: application/pdf
Page count: 28
Word count: 7127
Text sample:
2 Abstract Creating a Dynamic Tailored Online Health Education and Support Program for Women with Breast Cancer: A Case Study of the CHESS Program This paper describes the process we used to develop and integrate a tailored health information system for an existing online health education and support system for women with breast cancer called the Comprehensive Health Enhancement Support System (CHESS) “Living with Breast Cancer” program. The foundational steps of formative research involved identifying general informational needs associated
and easy way to refine user 29 interfaces. San Francisco: Morgan Kaufmann. Stout P.A. Villegas J. & Kim H. (2001). Enhancing learning though the use of interactive tools on health-related websites. Health Education Research 16(6) 721-733. Strecher V.J. Kreuter M. Den Boer D. Kobrin S. Hospers H.J. & Skinner C. (1994). The effects of a computer-tailored smoking cessation messages in family practice settings. Journal of Family Practice 39 (3): 262-268. Velicer W.F. Prochaska J.O. Bellis J.M. DiClemente C.C. Rossi


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